Tag Archives: grieving

With Love, to the Last Breath

roses

At 6 p.m. tonight, Dad took his last breath as my brother Dean told him that he loved him, and as I read Shakespeare’s Sonnet 130, one of Dad’s favorites. To understand why my Dad loved that particular sonnet so much, you have to appreciate how he “fought for his pants” every day of day of his wonderful marriage to my mother. Not long before he died, his eyebrows lifted up, the way they would when he saw someone who delighted him, and his lips moved as if he were speaking to them.

Dad, this is for you and Mom, thanks to the Bard:

My mistress’ eyes are nothing like the sun;
Coral is far more red than her lips’ red;
If snow be white, why then her breasts are dun;
If hairs be wires, black wires grow on her head.
I have seen roses damask’d, red and white,
But no such roses see I in her cheeks; 
And in some perfumes is there more delight
Than in the breath that from my mistress reeks.
I love to hear her speak, yet well I know
That music hath a far more pleasing sound;
I grant I never saw a goddess go;
My mistress, when she walks, treads on the ground:
   And yet, by heaven, I think my love as rare
   As any she belied with false compare.

Their love was rare, and they are together again. But, dear Dad, I will miss you.

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The Post That Shall Not Be Named

This blog post has alternatively been titled, “Laid Bare,” “Kicked in the Gut,” “Is This a Guy Thing?” and “WTF?” I thought about leaving the prompt, “Enter Title Here,” but that seemed a little too odd.

This post is about how, in the face of loss, differences in personality and coping approaches are laid bare. It’s about family. It’s about needing emotional support and not always getting it. It’s about how we are all human, including my brothers and me.

When my mother was ill and in hospice in 1999, my brothers’ personalities and mine were on full display. One brother responded characteristically by getting organized and applying his keen mind to the problems of medication and comfort; he was utterly reliable, a rock, and a little on the anal retentive side (said lovingly). Periodically his tough outer shell would crack and you could see the anxiety and pain that he held in check.

Another brother seemed to avoid coming around during Mom’s 3 1/2 month illness. He would come be her caregiver if asked, but there was a reluctance. After she died, he poured out his heart in the form of rituals and writing a speech about his memories of her.

From this and other experiences, I have learned how differently people grieve. I place no judgement on it. It just “is.”

We as a family — or as a team of caregivers — are not unique in the variation of our emotions and response.

My fellow member of the Caregivers Social Club (which has a membership of two) went through a health crisis last weekend when her husband, who has Alzheimer’s, was hospitalized with a life-threatening slow bleed in the brain. When we met for a glass of wine Thursday, according to our standing date, we talked about her husband’s sons’ responses. They talked about the brain bleed, the procedure and the prognosis for the procedure. But noticeably absent was any expressed emotion about seeing their father impaired by Alzheimer’s, acknowledgement of their own feelings, or sympathy for how hard this is on my friend — his wife — emotionally. But I know how hard it has been on her. While one part of your brain is whirring away managing symptoms and preventing problems with carefully executed clinical steps, another part is watching, feeling and hurting. She is constantly managing her husband’s emotions with patient reassurance, but most of the time no one is taking care of hers.

This week, I felt like I was kicked in the gut when two brothers cut their plans for visits shorter. Like my friend, I am busy – very busy – with Dad’s medical and physical needs. But I am also a little overwhelmed emotionally as I see new signs of decline arise every couple of days, if not every day. Dad’s not in crisis, but there is a slow-drip of worsening symptoms.

Maybe the mental thought process goes something like this:  Betsy sends near-daily email updates about how new problems have been identified and managed. Needed more caregiver help? She got it. Needed medications adjusted? She did it. Conclusion: “Betsy’s got it handled.”

Part of what has kept me going for the past four weeks has been looking at the calendar to the next date when one of my brothers would come and take over for 5-7 days. Unfortunately, through no fault of his own, the one who was to come yesterday got sick. But oh, did I feel crestfallen.

I wrote an email asking my brothers to start committing to a longer stretch at least once a month. I talked about the physical and emotional challenges, and about wanting make sure that I also spend some time with my husband, who now has my attention and company for a half hour or so before Dad awakens, and about 15 minutes after I come to bed and he falls asleep.

By happenstance on Wednesday night, one brother sent an email shortening his upcoming stay from four days to three saying that he needed to be home. The next day, my brother who had rescheduled his trip from January 4 to January 16 sent an email saying that he was shortening his visit from the requested six days to three so that he could celebrate a family birthday.

I hate asking for help. I really do. I’m a “handle it” kind of woman and always have been. I figure that my brothers know that. I think my emails all but beg for reinforcements.

My friend, Ellen, who I wrote when I was crying and needed to vent, observed that my brother’s email saying he was shortening his planned six day visit to three days contained no expression of feelings. I also thought it was interesting that he didn’t call. Just sent a two-sentence email. The day before, my Caregiver Social Club buddy described the same lack of emotional expression when she conversed with her husband’s sons.

Is this a guy thing? I don’t know. I think it’s a not-here thing and a scared thing. If you’re not here, you don’t see it and can comfort yourself by knowing Dad is getting great care. And a terminal illness – whether Alzheimer’s or congestive heart failure – is scary. Alzheimer’s perhaps especially so because of the genetic linkage (although the sons supposedly don’t carry the same gene).

When family members respond by sharing and pulling together, they grow closer. Unfortunately, the reverse is also true. I’m frustrated, hurt and trying not to be angry.

My hope is that when the brothers visit who have not seen Dad in a month or more, they will get it. They will understand that we need to be a true caregiver team and take turns. And that we each have something to say to Dad, some special kind of comfort that only we can offer. It’s time. Dad needs them and so do I.

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Summoning Angels

Perhaps the worst losses are the ones that we don’t expect: the children who die before their parents, the young mothers or fathers whose lives laid ahead of them, the mothers we expected to be in our lives for so much longer.

With these premature deaths, we wail with no less intensity than the mourners of ancient Rome, albeit through all the ways that we communicate now. Whether poured out in text messages, or emails, on Facebook or by telephone, it is awful to behold, and worse to feel.

With the loss of my “other mother” in October, I find myself compelled to unpack some Christmas decorations that I haven’t displayed in years: my mother’s angels. Back in the 50s and 60s, my mother collected small angel figurines that she displayed on a bed of “angel hair” (spun fiberglass) that glowed from the string of tiny white lights beneath. Each was lovely, but one in particular stood out: a small girl angel, clad in pink, rosy cheeked, curly haired, head bowed, hands clasped in prayer.

Angels weren’t just a symbol of Christ’s birth to my mother; she had her own little angel in heaven. Before I was born, my sister, Midge, died of leukemia at the age of four. I don’t remember seeing obvious signs of grief in my mother or father during my childhood. But much later, after my mother died in 1999, Dad poured out his heart to me. He repeatedly slapped his palm against his forehead as he described her calling out to him from her oxygen tent in the hospital, “Daddy, help me.” “I couldn’t do anything,” he said, “I went out of the room and pounded on the wall. I couldn’t do anything.”

In the past few weeks, I have borne witness to and experienced that stabbing kind of pain that comes with unexpected loss: the continuing fallout from the death of a young mother to alcoholism, the sudden loss of a joyous and loving young father, and my “other mother,” Miss Ann.

My other mother’s family gathered to make her favorite foods and set the table just as she would have, harvest colored candles arrayed on her heavy brass serving tray. My friend who lost her childhood buddy to addiction wrote a eulogy filled with beautiful stories of her wit and strength. My friend who lost her brother, the young father, raises beers to him to re-enact the fun times when they met at the Whole Foods Bier Garten. These moments were nothing like scenes from a TV drama in which survivors look beautiful while they delicately weep in their time of grief; they were – and are – red-eyed, snot-riddled affairs where people try to do something, anything, to make a terrible reality less terrible.

In reliving traditions – even privately – we summon the people we have lost, the people we feel we should not have lost. Are we hoping that their ghosts will be with us as we go through our rituals? Do we imagine that they will be near as angels, hovering over our lives? I think my mother imagined Midge as an angel, captured in the likeness of the little pink-clad figurine.

Caroline Kennedy, who knows a few things about grief, devoted a chapter to death and grief in her lovely collection of poetry, She Walks in Beauty (Hyperion, 2011). Among the poems was this excerpt from “To W.P.,” by George Santayana:

With you a part of me hath passed away;

For in the peopled forest of my mind

A tree made leafless by this wintry wind

Shall never don again its green array.

Chapel and fireside, country road and bay,

Have something of their friendliness resigned;

Another, if I would, I could not find,

And I am grown much older in a day.

But yet I treasure in my memory

Your gift of charity, and young heart’s ease,

And the dear honor of your amity;

For these once mine, my life is rich with these.

And I scarce know which part may greater be —

What I keep of you, or you rob from me.

Those who lose someone too soon know what it means to grow older in a day, and to feel robbed by the loss of someone who died before we were ready. As I pull out my mother’s angels, one by one, I call her: “Mom – whether you are angel or ghost – be with me.”

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Taking Mom for Granted

Although my mother died in 1999, she lives on in my mind. In not a few of my mental pictures, she is busy in the kitchen in her quilted satin pink bathrobe — the one Dad bought her on one of his last minute Christmas Eve shopping expeditions. She’s sweating slightly and occasionally barking orders like the domestic commander that she was.

My brother and I huddle around a giant stainless steel bowl “picking the bread,” a chore that involved plucking slightly stale sandwich bread into suitably-sized increments for the sage and onion stuffing. We cooperated but were none too happy about it. I am sure I had been told – repeatedly – to get out of my luxurious four poster bed in the dark corner basement room where I would easily sleep until noon, given half the chance. But I wasn’t given the chance as (alas) Mom needs help.

The bread picked, my chores continue, or I should say, “chore.” The only other standing task I remember on holidays was setting the table. Holidays, of course, called for the household’s finest: Grandmother’s heavy silver place settings, Mom’s “Golden Wreath” china, Waterford “Lismore” crystal and lots of silver serving dishes that invariably needed polishing. I’m sure I emitted my share of heavy sighs while getting everything up to Mom’s standards, which is to say the standards of a Marine Corps officer’s wife.

In the meantime, my Mom finished the stuffing, got it in the bird, “jounced” the turkey up and down with Dad’s help to maximize room for the stuffing, stitched up the gaping maw of the turkey’s innards, and started the long, slow process of babysitting and basting the turkey to its golden, roasted peak. Somewhere along the line she prepared the side dishes, although turkey, mashed potatoes and stuffing were all anyone ever cared about.

When it came time to gather ’round the table for grace, a toast, and the ceremonial carving of the bird, we thanked Mom. Or at least I think we did. To be honest, I’m not sure.

I took our delicious holiday meals for granted. I took our lovely home and table setting for granted. I took my mother for granted.

And, as strange as it sounds, I am grateful that I could be so oblivious in my security. One of my mother’s greatest gifts was that she was utterly reliable and predictable in her role as mother. I never had to question whether she loved me, or how she would respond if I did something she approved of, or disapproved of. She was the same, day in and day out. An immutable force of nature.

As I look forward to the holiday tomorrow, I expect that I will be taken for granted. I hope those who I love don’t have to think about who I am, what to expect of me, and how I feel about them.

So, go ahead. Take me for granted. It’s one of the nicest compliments you could pay me as a legacy from my mother.

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Saying goodbye

While my “other mother” was lying in her hospital bed at St. Joseph’s Medical Center 10 days ago, in between periods of stark awareness, my mind kept rewinding and fast forwarding. I rewound to a night thirteen years ago when my mother was in a different bed in St. Joseph’s, fading in and out of lucidity following procedures that first discovered her late stage lung cancer and then sought to repair a hole in her lung so that she could go home with hospice. But I was also fast forwarding, imagining the day that I will hold my father’s hand while he struggles to leave this earth. I think that’s how it is for many people: when we lose someone we love, we also think about the others we have lost, and those who we cherish and are losing.

I almost published this journal entry from February 16, 1999 just before I headed up to Washington state. When I returned Monday night, it was the first thing I saw on my desk:

Last night, I spent the night with Mom at St. Joseph’s Medical Center. Two-and-a-half weeks into her stay, following her diagnosis of lung cancer, she was for the first time completely lucid.

At about 9:45 p.m., Mom was looking at the ceiling. I asked her if she was thinking or looking at something. She replied that she was thinking.

Over the next hour, in quiet and measured tones, she said goodbye to me. She began by saying, ‘You’ve been a wonderful daughter.’ After a few minutes, she added, ‘You’re a very competent woman.’

I realized that she was beginning to say goodbye. I wanted to tell her how much she meant to me but the words seemed so inadequate. I told her she was a wonderful mother — strong, loving and nurturing. I remember once, when I was quite old, that she had responded to my sadness by pulling me on to her lap in my Nana’s rocking chair.

I hugged her and apologized for crying. She said, ‘Why not?’ Then she said, ‘You are a beautiful daughter; now get some Kleenex and blow your nose.’

After a few minutes she said, ‘We’ve had a wonderful life together. Sons are special but there is something very important about a daughter.’  She tried to express her thoughts about what makes daughters different and struggled a bit with the right words. She said, ‘Daughters are more emotional.’ It seem to me that what she meant was that daughters are close to one’s heart in a different way.

I said to her that my brothers had been wonderful throughout her stay. I told her they had comforted her and been loving and compassionate. I told her that we had not left her in the entire 2 1/2 weeks. This seemed to surprise her. I added, ‘We didn’t think you would want to be left alone.’ She said, ‘You were right,’ and smiled softly.

She said that her grandmother was in her late 90s when she died and that she couldn’t remember how old her mother was when she died. Implicit in her remark was her consideration of the age she would be when she died.

‘It’s one of the hardest things you ever do to say goodbye to people you love,’ she said, ‘but it’s important.’

I asked her if she was worried. She said, ‘Not exactly.’ I said we loved her and would be with her every step of the way and that God was with her.

She asked, ‘How is your Dad handling all of this,’ glancing at her hospital bed and surroundings. I said that he was sad because she is so precious but that he was okay and taking care of himself. I said I would take good care of Dad.

She said, ‘I’m going to outlive your Dad,’ and then she added, ‘at least I think so.’ Then she reflected for a while.

I commented on her strength and said that we were raising another strong woman in Maddie. She agreed and added, ‘And Tommy is wonderful, too.’ I reminded her what she had said emphatically to Maddie that morning: ‘You know what? I like you.’

Finally I asked if there was anything I could do to make this easier. She said, ‘Well, one thing you can do is continue to be the marvelous woman that you are — competent, with a high level of activity, a very high level of activity. The world needs you.’

She drifted off to sleep. Not long after this was written, she did make it home with hospice. She passed away the day after Mother’s Day, on May 10, 1999. I miss her.

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When an aging parent dies: the underground river

This week a friend of mine posted on Facebook: “My Dad has been gone for 13 years or thereabouts, just thought of him. I sure hope all of your dads are still alive. I miss him.”  Immediately five friends posted responses. Here’s one example: “(Dad’s) been gone for 11 years now. His boots are by my back door. There’s never a day that I don’t think about or miss him. We never, nor should we ever get over the loss of our parents. We just figure out another way to live without them.”

Then today, I received a call from the daughter of my Dad’s next-door-neighbor at his assisted living community (I’ll post her name if the family gives me permission). Her Mom died in late March at 97 after a rough couple of years. I really miss seeing their Mom – who had a remarkable spirit and great sense of humor – and had written the daughters a note.

One of the things “E” said to me really hit home, “This is a special experience no one knows about until you’ve had it.”

And she’s right. Since my Mom died in 1999, I have often thought of this shared experience as an underground river. When you lose a parent, people suddenly come forth with a deep empathetic response based on their own experience. Not just a few people, but many, people you never thought would express themselves in such emotional terms. These are people who have been in your life all along, but you never knew that they were still feeling their own deep-seated loss.

“E” said that she was surprised that so few families seem to visit at the assisted living community. A friend of mine and senior expert, Marsha Vacca, once told me that people have to sort through “what they will do, what they won’t do, what they can do, and what they can’t do” when it comes to supporting a parent.

Many people are too far away, have too much on their hands or are too financially constrained to be much of a presence. Others choose not to. As “E” said, when a parent gets older, it’s time to get over “smoldering issues” that lie in the past.

There are exceptions. A dear friend’s mother may have given birth to her, but has treated her badly for many years. She is justified in keeping her distance.

“E” also reminded me about the ways that siblings can each make a contribution to an aging parents’ happiness. “We all had our role,” she said. “For example, my sister felt it was important to provide a festive atmosphere for our mother, and she was the one to set out gin and tonics on cocktail napkins.”

Finally, we talked about what people say when your parent dies, and we both admitted that we would write a few sympathy cards over if we had the chance. “He/she lived a good long life” turns out not to be very comforting, even if your parent is 96 or 97. You can never have someone that you love in your life for long enough.

If you’re fortunate, you’ll know that you made a difference in their quality of your aging parent’s life. But you will still feel the urge to stop by for an impromptu visit or pick up the phone to talk to him or her. For a long, long time.

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