Tag Archives: grief

My Back and Forth Faith

pendulum

Last Sunday, I shared how generally pissed off I was with God. If I learned anything from marriage counseling a dozen or so years ago, it’s that arguing isn’t a bad thing. In fact it’s healthy. It’s how you argue that matters. Do you argue to hurt, or to be heard? Do you listen as well as assert?

On Christmas, Maureen Dowd published a column about losing her friend Robin and Father Kevin O’Neil’s meditation on dying.

I underlined two of Father Kevin’s phrases in particular:

“A life of faith is often lived ‘back and forth’ by believers and those who minister to them.” and…

What I do know is that an unconditionally loving presence soothes broken hearts, binds up wounds, and renews us in life. This is a gift we can all give, particularly to the suffering.”

Back and forth, that’s me. At times in my life, I have felt the presence of God directly. I have asked him for what I want and need, although perhaps he heard the longing of my soul even more than my words. And He answered. At other times, we have been estranged. And recently, we’ve been fighting.

Although it appears Dad is not going to rally – as he has time and time again – he is comfortable, and I am settling in to his new reality and mine.

As friend Jim says, “So glad you are ‘turning it over’.  Remember, the descent (which I prefer to call the path to ascent) is like going down steps of a stairs.  Sometimes one by one, and sometimes several.  Nothing you can do about this but be present and loving.  It is nature and his human body with his spirit trying to discard it so it can move forward.”

A prayer, then:

Help me, God, to be fully present

Help me to feel calm so that I can calm my Dad

Help me to radiate so much love that it warms him to his toes

Help me to support the others who love him on this awful journey

Help me to understand

Help me to love

Help me

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Dear God, You and I Need to Talk

Dennis Armstrong, the Sutter Hospice social worker who comes by after you’re 24 hours “in service,” asked me, “Does your father have a faith or belief system?”


godtalkstoyou.com

It’s complicated. You see, Dad says conflicting things. On the one hand, he says that he wishes he could believe in God but he doesn’t. On the other, he has talked about seeing Mom after he dies. And about how God let Mom down when she was dying. “I’m afraid,” she said at one point in her illness. If there is a God, Dad wondered, how could he abandon her in her moment of need? I’m sure he was also flashing back to losing my sister, Midge, to leukemia at four years old. He used to talk a lot about the pain of losing Midge. It’s even harder to understand God’s hand in that one.

My beef with God is different. I understand that it’s really hard work getting born into this world; I have the mental scars from back labor to prove it (thanks, Maddie). I don’t think it’s fair to work so hard to get out of it. Why do people have to become feeble and go through pain and discomfort before they make their exit? Did God figure that people would just hang around too long if it was pleasant at the end, and end up overpopulating the world?

I realize my own relationship with God is a little iffy right now. I usually talk to God when I go to bed. I thank Him for the amazing people and things in my life, and I ask him for what I want and need. Releasing Dad has long been a prayer of mine.

But I’m a little bit pissed off this morning knowing how tough things are for Dad right now. I’m working on it, God, but I really don’t understand how this is such a great plan.

An old family friend, Bruce Wheeler, shared a favorite Bible quotation of his: Rom 8:31 “If God is with me who can be against me?”

Are you with us God?

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Summoning Angels

Perhaps the worst losses are the ones that we don’t expect: the children who die before their parents, the young mothers or fathers whose lives laid ahead of them, the mothers we expected to be in our lives for so much longer.

With these premature deaths, we wail with no less intensity than the mourners of ancient Rome, albeit through all the ways that we communicate now. Whether poured out in text messages, or emails, on Facebook or by telephone, it is awful to behold, and worse to feel.

With the loss of my “other mother” in October, I find myself compelled to unpack some Christmas decorations that I haven’t displayed in years: my mother’s angels. Back in the 50s and 60s, my mother collected small angel figurines that she displayed on a bed of “angel hair” (spun fiberglass) that glowed from the string of tiny white lights beneath. Each was lovely, but one in particular stood out: a small girl angel, clad in pink, rosy cheeked, curly haired, head bowed, hands clasped in prayer.

Angels weren’t just a symbol of Christ’s birth to my mother; she had her own little angel in heaven. Before I was born, my sister, Midge, died of leukemia at the age of four. I don’t remember seeing obvious signs of grief in my mother or father during my childhood. But much later, after my mother died in 1999, Dad poured out his heart to me. He repeatedly slapped his palm against his forehead as he described her calling out to him from her oxygen tent in the hospital, “Daddy, help me.” “I couldn’t do anything,” he said, “I went out of the room and pounded on the wall. I couldn’t do anything.”

In the past few weeks, I have borne witness to and experienced that stabbing kind of pain that comes with unexpected loss: the continuing fallout from the death of a young mother to alcoholism, the sudden loss of a joyous and loving young father, and my “other mother,” Miss Ann.

My other mother’s family gathered to make her favorite foods and set the table just as she would have, harvest colored candles arrayed on her heavy brass serving tray. My friend who lost her childhood buddy to addiction wrote a eulogy filled with beautiful stories of her wit and strength. My friend who lost her brother, the young father, raises beers to him to re-enact the fun times when they met at the Whole Foods Bier Garten. These moments were nothing like scenes from a TV drama in which survivors look beautiful while they delicately weep in their time of grief; they were – and are – red-eyed, snot-riddled affairs where people try to do something, anything, to make a terrible reality less terrible.

In reliving traditions – even privately – we summon the people we have lost, the people we feel we should not have lost. Are we hoping that their ghosts will be with us as we go through our rituals? Do we imagine that they will be near as angels, hovering over our lives? I think my mother imagined Midge as an angel, captured in the likeness of the little pink-clad figurine.

Caroline Kennedy, who knows a few things about grief, devoted a chapter to death and grief in her lovely collection of poetry, She Walks in Beauty (Hyperion, 2011). Among the poems was this excerpt from “To W.P.,” by George Santayana:

With you a part of me hath passed away;

For in the peopled forest of my mind

A tree made leafless by this wintry wind

Shall never don again its green array.

Chapel and fireside, country road and bay,

Have something of their friendliness resigned;

Another, if I would, I could not find,

And I am grown much older in a day.

But yet I treasure in my memory

Your gift of charity, and young heart’s ease,

And the dear honor of your amity;

For these once mine, my life is rich with these.

And I scarce know which part may greater be —

What I keep of you, or you rob from me.

Those who lose someone too soon know what it means to grow older in a day, and to feel robbed by the loss of someone who died before we were ready. As I pull out my mother’s angels, one by one, I call her: “Mom – whether you are angel or ghost – be with me.”

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Turn off, brain, and let me go the f* to sleep!

The lovely view from where I didn’t sleep

Just when I feel overwhelmed by my Dad’s declining health, it seems that the sleep gods conspire against me.

My anxiety – and accompanying sense of hyper-vigilance – built to a pitch over the weekend, even while my husband and I attempted to relax in Northern California’s playtime paradise of Lake Tahoe.

Over the past month, the medication that had been working so well to control the symptoms of Dad’s long-term congestive heart failure sputtered and stalled in its effectiveness. His weight dropped from 204 lbs. to 188.5 over three weeks, and then, when we cut back the dosage, spiked back up to 198 in less than a week.

My brother, who came into town to “spell” me for my anniversary trip, called me Saturday night. His voice was choked with emotion as he explained that Dad looked as weak and worn out as he’d seen him. When he asked Dad how he was doing, Dad replied, “I don’t think I can pull through this…”

That night, I left my cell phone on in case my brother needed to reach me in an emergency. Then starting at 1:30 a.m. that night, I started this exchange via text with my young adult son, who was finishing up packing for a 5 day cruise the next day. What’s funny about this is that I just couldn’t let go. I felt utterly driven to ensure that my son did not – gasp! – make a mistake packing:

Him: Do I really need a carryon? I was just gonna keep it simple with a rollaboard.

Me: It if fits that’s fine

Him: Fits what? I was gonna check it

Me: Rollaboards can go in the overhead bin. Then it can’t get lost. If you are going on a cruise your bag will never catch up if it gets lost. When you connect there is more of a chance of it not getting on the 2nd plane. It’s up to you but it’s safer

Me: ‘nite

Him: I have the red one, will that fit? [The red rolling bag is ginormous.]

Me: No. It has to be one of the small black ones. Sounds like you don’t have a choice unless you have a duffel that qualifies as a carry on. Southwest is pretty good about getting bags there so you’ll probably be fine. Don’t check your computer – keep it with you.

Me (again): The carry on can’t be longer than 24″ [Note: I have now gone on SWA via my cell phone to actually check the limitations.]

Me (again): Be careful not to oversleep

Me (yet again): Can I go back to sleep now?

Him: Yeah, sorry, I’m just gonna check it

Me: OK but keep your computer with you. Put your name and home address on a piece of paper inside the checked bag. Make sure it has a luggage tag too or put a paper one on it at the airport. Travel safely.

Me (again): Got your passport? Keep that with u too

Him (now at 2:02 a.m.): Found a duffel, using it instead & I’m not bringing a computer

Me: OK but if they make u check it remember to keep your passport with you, preferably in something by your feet. Passports can get stolen out of backpacks in bins. Students get targeted by thieves.

Me (finally): OK goodnight. I love you. Have fun.

Him: Gnight mom! Love you too & I’m sure we will

You can guess how the night went after that. I didn’t fall gently back into slumber.

On Monday, I made a record 20 phone calls to my father’s doctor, to friends and family who visited my father at his assisted living apartment, and to family to report in. At the time, Todd and I were attempting to complete a 7 mile hike.

That night, I was awake from 3 a.m. to 5:45 a.m. I’d drift into sleep and pop right back out of it.

I know I am not alone. Over the weekend, a dear friend lost someone she’d known and loved since childhood. She texted me last night, “Just took pill… haven’t slept in five days.” My brother who had been upset over the weekend texted me Tuesday, “I slept finally last night, though I had a 90 minute break in the middle.” Another close friend posted on Facebook: “Being the ‘sandwich’ generation and responsible for taking care of both parents and children sucks! Why do both generations have issues at the exact same time?????”

Five question marks is about right.

“Grief is a journey, I’m told,” my friend texted last night.

Yes, it is. But I am fortunate to not be on the trail alone.

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When an aging parent dies: the underground river

This week a friend of mine posted on Facebook: “My Dad has been gone for 13 years or thereabouts, just thought of him. I sure hope all of your dads are still alive. I miss him.”  Immediately five friends posted responses. Here’s one example: “(Dad’s) been gone for 11 years now. His boots are by my back door. There’s never a day that I don’t think about or miss him. We never, nor should we ever get over the loss of our parents. We just figure out another way to live without them.”

Then today, I received a call from the daughter of my Dad’s next-door-neighbor at his assisted living community (I’ll post her name if the family gives me permission). Her Mom died in late March at 97 after a rough couple of years. I really miss seeing their Mom – who had a remarkable spirit and great sense of humor – and had written the daughters a note.

One of the things “E” said to me really hit home, “This is a special experience no one knows about until you’ve had it.”

And she’s right. Since my Mom died in 1999, I have often thought of this shared experience as an underground river. When you lose a parent, people suddenly come forth with a deep empathetic response based on their own experience. Not just a few people, but many, people you never thought would express themselves in such emotional terms. These are people who have been in your life all along, but you never knew that they were still feeling their own deep-seated loss.

“E” said that she was surprised that so few families seem to visit at the assisted living community. A friend of mine and senior expert, Marsha Vacca, once told me that people have to sort through “what they will do, what they won’t do, what they can do, and what they can’t do” when it comes to supporting a parent.

Many people are too far away, have too much on their hands or are too financially constrained to be much of a presence. Others choose not to. As “E” said, when a parent gets older, it’s time to get over “smoldering issues” that lie in the past.

There are exceptions. A dear friend’s mother may have given birth to her, but has treated her badly for many years. She is justified in keeping her distance.

“E” also reminded me about the ways that siblings can each make a contribution to an aging parents’ happiness. “We all had our role,” she said. “For example, my sister felt it was important to provide a festive atmosphere for our mother, and she was the one to set out gin and tonics on cocktail napkins.”

Finally, we talked about what people say when your parent dies, and we both admitted that we would write a few sympathy cards over if we had the chance. “He/she lived a good long life” turns out not to be very comforting, even if your parent is 96 or 97. You can never have someone that you love in your life for long enough.

If you’re fortunate, you’ll know that you made a difference in their quality of your aging parent’s life. But you will still feel the urge to stop by for an impromptu visit or pick up the phone to talk to him or her. For a long, long time.

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